Too Much Interference

by Donna Poole

I thought I’d probably be dead by now.

I imagined any self-respecting woman with refractory cancer, one who’d flunked chemotherapy twice and radiation once, would give a resigned nod, gather her flowing robes regally about her cancerous self, and make a dignified exit. Off I’d go, gently, into that good night. Et cetera, et cetera, et cetera.

See, right there, that’s my first problem. I wear comfy sweatpants these days and have no flowing robes. And I’ve never managed a dignified anything in my life. If someone told me to do a stately exit stage right, I’d trip, fall, laugh, and exit stage left.

Here’s my second problem. Even though at the time I looked like a half-starved Sphynx cat, hairless, bony, and needing to double knot my suddenly too large sweatpants, I wasn’t ready to quit fighting, and neither was my oncology team. They let me becone a guinea pig for a drug trial. The manufacturers of said drug pay for my many tests hoping they’ll show I’m the miracle patient who will propel their medication to market. Thanks to them, I think I’ve had a baker’s dozen PET scans and twice that many CTs all with contrast.

Think of the radiation! You know how they say some people light up a room? I really do! You may hear a buzzing noise like a high-powered wire if you sit too close to me, but God is using Epcoritamab. It’s keeping me alive.

There are other reasons I’m still on this side of the dirt. It’s true that laughter is good medicine. Very. Good. Medicine.

My crazy, funny family makes me laugh. My husband, John, is the worst of the bunch. The other day a receptionist was trying to set up an infusion for me for something unrelated to cancer and struggling to find a time to work me in.

“We’re short on nurses that day,” she explained.

“That’s okay,” John said. “We’ll take a tall one.”

That receptionist is well acquainted with John, so it wasn’t the first time she’d heard his puns. She asked me if he takes his stand-up comedy routine on the road.

John is a pastor, and yes, puns sometimes accompany his preaching. But he’s in good company.

Charles Spurgeon was a famous English preacher and author in the 1800s. A woman once rebuked him for too much levity from the pulpit; humorous preaching wasn’t all that common in the Victorian era.

“Ma’am,” he replied, “if you only knew how much I keep in, you would commend me!”

Our church family helps keep me cheerful. I wish you could meet them. They are the best people anywhere. They love me and show it in every way. And they make me laugh. I can’t go inside church because my oncology team keeps me isolated, so I listen from the parking lot. John brings me home verbal messages, cards, notes, and jokes.

Sunday John said, “This is to Donna from Dave.

“Eve got upset because Adam kept coming home late.

“‘Adam, is there another woman?’

“Eve! You know you’re the only woman!’

“That night Adam was almost asleep when he felt Eve poking him.

“Eve, what are you doing?’

“‘I’m counting your ribs!’”

And my church family, those dear people who travel down the gravel roads to meet at the white frame church on the corner—they pray for me. The ones who’ve moved away and only drive down the dirt roads now in their memories—they still pray for me.

And let me tell you more about our family! There are twenty-four of us now. Most of them will perform super-human exploits to rearrange schedules to get together whenever possible, and that does me more good than chemo ever could. A daughter has opened her large home for family gatherings.

A son and daughter-in-law have hosted family fun more times than I can count. I sit outside listening to a crackling bonfire as the first stars decorate the night sky and look around at the sweet faces of the family I love. How can I not hope, try, and pray to get well?

Then there’s the daughter who lives with us cooks delicious meals and coaxes me to eat. I hate to think what this house would look like if she hadn’t been cleaning it for the last two years. She does it all because she loves me.

Do you believe love can help keep someone alive? I do. Like laughter, it’s another medicine God uses until it’s His time to call someone Home. Love, and prayer.

All our grandchildren old enough to talk pray for me; it would be ungrateful of me to give up on life without a fight.

I know I owe much to the prayers of family, church family, and friends. We have one friend I haven’t seen for over two years, but I remember well how he prays. He begins with a long pause. After he says one quiet word, “Father,” he usually pauses again. I’m always tempted to open my eyes at that point, because I can feel God’s presence with us, and I want to see Him. But I don’t look.   

People I’ve never met from all over the world pray for me, including some of you. I’m grateful. And I’m glad I’m still here to pray for people who need me.

Whenever I’m tempted to give up, and yes, sometimes I feel like it, I think of all the people loving and praying. How can I die with so much interference?

My day will come though; it does for all of us, and I’m okay with that. It’s been a good life; if I could go back and start over, I’d choose the same one. I know where I’m going, and I like to think about heaven and everyone waiting for me there.  

“How are you, Donna?”

I get that question a lot. The answer is long and complicated.

Let’s just say I’m still on this side of the dirt. And I’m glad to be here.  

John laughing

Not Yet

by Donna Poole

When life revolves around waiting rooms, infusions, clinical trials, tests, procedures, and doctor visits, you make your own fun.

I do it every time a medical person asks me the question they always ask. Said medical person has my records and has already been introduced to Morticia, my lung tumor.

“Do you smoke, Mrs. Poole?” They ask this elderly woman with cancer.

“Not yet.”

I wish I had photos of the shocked expressions. Then I laugh, they laugh, everyone laughs. Except John. My husband has heard it a few too many times, and he didn’t think it was funny the first time. I, however, find it more hilarious every time I say it.

Not yet!

I don’t always use that phrase in a humorous way.

“Do you want a wheelchair, honey?”

John looked at me with concern and motioned to the row of wheelchairs ready and waiting outside of the Rogel Cancer Center at University of Michigan Hospital. I was already short of breath and leaning hard on his arm, and we’d only walked from the parking lot to the entrance. We still had a long way to go to get to Star Ship Enterprise where I’d have my high-resolution chest CT scan.

I looked at the maize and blue wheelchairs and hesitated, tempted. Then I shook my head.

“Not yet.”

I didn’t have to say more; John knew what I meant. This “not yet” wasn’t joking.

I want to walk when I can as long as I can.

As usual, I regretted my decision half-way there, and there was no Scotty to beam me up. My legs felt like cooked elbow macaroni, and my vision blurred. I’m not sure why I’m so stubborn about the wheelchair, but I cling hard to the things I can still do.  

With unspoken gratitude to the person who’d invented handrails along hospital corridors, I finally arrived at my destination and collapsed into a chair.

How many times had I been to this room?

I was losing count.

In two years, I’d had twenty-six CT scans and twelve PET scans, but this would be my first high resolution CT. I fell in love with high resolution the moment I found out I didn’t have to drink the wonderful Kool-Aid—AKA barium. Not only that, but I didn’t even need a needle poke for contrast dye. This wonderful machine, in about three minutes, did a Dr. Leonard “Bones” McCoy worthy examination on my lungs. It saw things in minute detail a regular CT can only dream about.

The examination completed; we began making our way back to the parking lot. Stopping to catch my breath, I leaned against a handrail. A tall man with dark curly hair hesitated behind us. He was pushing a shiny metal cart with some boxes on it. He paused and looked at us with concern.

“You can go around us.” John laughed. “We’re slow.”

He nodded and steered his cart by us. When he got even with us, he stopped. Above the hospital required mask, the man’s blue eyes locked with mine.

“I hope everything will be okay,” he said.

His voice carried so much compassion. I looked at him, startled.

Are you an angel?

He was everyman. He was every good man and good woman who stops to show compassion to a stranger. Just six words, but tears stung my eyes, and still do when I remember him.

I’m not ready to give up on people. Not yet.